Our BEST Stories: Meet Y. Monet Miller

Find your voice and inspire others to find theirs.Stephen Covey

Finding and sharing our voices is an extraordinary and universal human experience.

A voice can breathe life and expression into our personal stories, help support and advocate for ourselves and others and create powerful conversations and connections.

Our voices are the building blocks to understanding, change, progress and hope.

Puget Sound resident, Y. Monet Miller knows a little something about having a voice.

Y. Monet Miller, Courtesy Photo
Y. Monet Miller, Courtesy Photo

The New Jersey native spent well over a decade as an advocate for children with special needs. She then moved into work with the Washington National Education Association, conducting workshops for the state’s union and providing advocacy for union rights and public schools. Her career further expanded into an assignment with the National Education Association. Her vocation took her on the road, facilitating workshops and conducting public speaking engagements throughout the nation. In her spare time, she provided personal consulting and inspiration for her friends.

Talk about having a voice, indeed.

Miller was self-described back then as an energetic, motivated and high-spirited woman, who lived life to the fullest and was at the peak of her career.

In October of 2012, Miller’s life changed in ways she would never have imagined.

Miller was struck in the head with a metal door. As she describes it, it was the beginning of a period of time of being “lost.”

With no family in the Seattle-area, she found herself going through her medical ordeal alone.

It was not easy.

“I had lots of headaches,” says Miller. “At first, I wasn’t diagnosed properly and the doctors ignored the symptoms. I found myself going through the process and taking lots of pills.”

Soon after, Miller began to have slurred speech and lost her verbal fluency. That change, in particular, was especially frightening.

Eventually, Miller was diagnosed with post-concussion syndrome and a traumatic brain injury. Memory issues, continued speech difficulties and headaches were overwhelming. That was the beginning of a long odyssey of challenges. For days, weeks and months, the headaches were constant, lasting anywhere from 30 minutes to three hours. Feeling isolated and alone led to depression.

“I lived like a ‘vampire,’” shares Miller. “For two years, I stayed in the house. Lights and people were just too hard. I’d wake up each day and feel completely disconnected.”

However, one day, Miller received the gift of hope from a powerful and unexpected source.

She saw a vision of her grandmother and the words that her grandmother uttered in that vision, changed her life.

“Don’t lose your God-given gift—your voice.”

The impact of that vision and those words were profound.

“I enjoyed talking,” says Miller. “It’s 2015 and it’s time to make a change and take on a new approach. I needed to ask the question: who am I? I also wanted to take back the dignity and self-worth I lost with my injury. I realized how alone I felt and that others must feel this way, too.”

Miller’s first stop on her journey forward was taking a look back at some powerful family history.

As her grandmother’s presence filled her heart, soul and mind, she decided to go back even further and embrace the stories of the strong history, legacy and faith of her other female ancestors.

Inspired by these women, Miller created a “map” of her journey and joined a brain injury support and social group through the University of Washington. The support group had a profound influence on her.

“We shared our stories and provided a system of support and resources for each other,” says Miller. “The group help ground me and forced me to accept. I was forced to find out about this new person, ‘me’ and to tell the truth and have some ‘real talk.’”

Miller also found herself more motivated than ever. As she was finding her new voice, she was equally as passionate about helping others find their voices, too. She also wanted to provide a voice and speak for those who cannot speak for themselves.

Today, Miller has dedicated herself to creating a platform to give voice to those who live with brain injury and their families; she’s eager to use her voice to give back. She’s looking to speak in front of the community, particularly to those in the medical community to help build a bridge of understanding.

She’s also motivated to help anyone who needs her.

What would Miller say to others who are coping with brain injury and who could use some support? Her message is straightforward.

“I understand the fear, feeling like a hostage and hitting rock bottom,” explains Miller. “I know what it’s like to peel away the things that hurt. When I see them, I see me.

I’m a testimonial and believer that we’re gonna be okay. We might be the person we were from before, but we will be a better person.

Know your resources. Have faith. We’re going to thrive in time. Give in to being victorious, not a victim. Be vigilant in learning about your own needs and self-care and make adjustments and network.”

And the final thing Miller would leave people with? A very simple phrase, which encapsulates her vision.

“I’m here.”

If you are interested in contacting Y. Monet Miller, please contact Kim at kimt@brainenergysupporteam.org for more information.

 

Our BEST Stories: Janet Novinger

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If you want to see someone’s smile and energy light up a room, spend about five minutes with the Brain Energy Support Team’s Learning Coordinator, Janet Novinger.

Novinger has this innate way of connecting with others in such a positive and big-hearted way; one can’t help walking away feeling empowered and cared about.  It’s with this spirited persona that she has lovingly embraced the BEST family with open arms and an open heart.

Novinger became introduced to the BEST organization in the fall of 2011. She began coordinating and facilitating BEST educational opportunities and trainings in 2012 and 2013. Now, with the launch of the new BEST Learning Center in January of 2014, Novinger is beyond thrilled, not only by the beautiful training facility, but by all of potential connections with class participants and the community at large.

For Novinger, to say learning, training, making connections and bonding in an educational setting is a passion, is a vast understatement. For this teacher, mentor, businesswoman and supporter, it’s the very fabric of Novinger’s very being. She has worked for over two decades—both externally and internally—as an organizational consultant in the greater Seattle region for a multitude of clients.

“My tagline, if you will, of my company Explorations, (www.explorationsconsulting.com) is ‘explorations, learning, growth and change,’” explains Novinger. “Magic happens in groups. We really begin to see things within ourselves and others.”

“I absolutely love ‘setting the stage’ for these experiences! Whether it’s the planning, thinking or research, I do these things with a big heart. I love the beginning of that communication process with participants and preparing the ground to learn and connect.”

Novinger continues, “Anything can happen in a classroom. The possibilities are so exciting! There’s such an ‘aliveness’ by engaging with a group. It facilitates and allows people to examine where they want to go and how they want to be transformed. People can think about their next steps and how they want to gain and use their skills.”

“It’s just so sacred.”

“Sacred” is a good way to describe Novinger’s connections to BEST. As an experienced coordinator and facilitator for many other similar organizations over the years, BEST is unique and special. Novinger’s words capture that connection well.

“Penny (Condoll, BEST Founder and Chief Visionary Officer) and Gloria (Kraegel, BEST Executive Director), have been able to create the organization in my mind and in my heart,” smiles Novinger. “Don’t get me wrong; there are some really great organizations out there that really do help and support people and their families with traumatic brain injury. However, at BEST, there’s a real focus on the impact of traumatic brain injury on his or her caring circle. “This concept often gets ‘lost’ in the bigger organizations as some tend to focus in on research, prevention, education and advocacy only.”

The bottom line for Novinger about BEST, a perhaps a custom “tagline” so to speak?

“In my mind, BEST improves today and tomorrow.”

Todays and tomorrows for Novinger are special and important, as she is too, a brain injury survivor. Two freak accidents in a five week timespan changed Novinger’s life forever in 1999.

It was a simple case of being in the wrong place at the wrong time.

In 1999, Novinger was employed at the Seattle Parks and Recreation Department. A teen was riding his bicycle indoors on the office stairs, when Novinger proceeded into the stairwell. An instantaneous collision occurred and Novinger was badly injured. Despite her pain and discomfort, she pushed herself to return to work, when a piece of equipment in the nearby restroom suddenly fell and struck Novinger in the head.

“Life was never the same after that.”

Due to “second impact syndrome” Novinger’s brain function changed. Novinger worked hard on self-care, creating and implementing different systems to manage challenges and engaging other people’s help in her own support circle. Things that are sequential, planning tasks, following steps and scheduling are difficult. Add what Novinger calls, “a level of fatigue and physical pain that shows up despite my best efforts,” along with balance and eyesight issues, well, some days can be pretty difficult and frustrating.

“Sometimes, I can’t understand why I can’t do something,” says Novinger. “It can be frustrating. But then I realize: that’s the brain (injury). I realize then that I need to approach it with compassion, kindness and flexibility.”

It’s with that very approach that Novinger hopes to continue to embrace in 2014, as well as continue to tap into her passions. Besides her work, one of Novinger’s big passions is her beloved adopted home of Seattle. The Midwest native come to the Emerald City in 1989 and has never looked back.

“The land here speaks to me,” beams Novinger. “I love the people, the vibrancy of the city and the sheer beauty here.”

Family is also a big passion for her. They include a niece (who she says with a smile that she is completely “attached” to), her sister, brother-in-law, mother and two rescue cats, Peanut and Mowgli. The cats have an extra special place in Novinger’s heart.

“These cats have a traumatic background and in many ways I feel like we are all healing together,” shares Novinger. “Not only do the cats provide company, but they are always happy to see me, have a sense of when I need them and they are both real cuddlers.”

And of course, there’s her passion for the people and programs at BEST. What does Novinger see for the organization in 2014? Her vision is straightforward.

“With the BEST Learning Center, I want to create programs and success for myself and for others here at BEST.”

“I have found with my traumatic brain injury the desire to heal and have the fullest and best life possible. I’ve learned that there are so many, strategies and practices out there to help.”

Have a BEST story you’d like to share? Contact Kim Thompson at kimt@brainenergysupportteam.org.

 

 

Our BEST Stories: Meet Desiree Douglass of HeadStrong

 

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Meet Desiree Douglass.

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Above: Douglass (on the right) poses with a friend at a HeadStrong event (courtesy photo)

Douglass is the president and founder of HeadStrong, a locally-based organization that supports youth with traumatic brain injury and their families. Douglass and the HeadStrong team have been longtime BESTies and community partners of the Brain Energy Support Team (BEST).

BEST had the opportunity to sit down with Douglass and ask her about her life, her passion and mission around HeadStrong and all of the support, resources and special events that the organization has to offer.

Read on and enjoy! We are sure that Douglass’ passion, energy, enthusiasm and warm heart will inspire you. Please join BEST by sharing the message of this great organization.

BEST: Tell us a little bit about your personal life.

DD: In 1990 our family moved from Ashland Oregon up to Bellingham.  Wow, 24 years went fast! Both of my sons grew up in Western Washington and say they could never live anywhere else. I have to agree with them. I live in Seattle and have my own business as an environmental planner for nearly 20 years.  I love to hike and camp. I also love live music and do Cuban dance.

BEST: When was HeadStrong founded and why? What is the mission and vision of the organization?

DD: HeadStrong was founded in 2006. I wasn’t actually trying to found an organization at the time. I started out trying to find other families who were living with brain injury so we could help each other through recovery and help our children not be so lonely. My youngest son had been hit by a car in a crosswalk in Seattle a year earlier, in 2005 when he was 11 years old. He suffered a severe traumatic brain injury. Our community was very supportive for the first six months but then slowly, all of his friends drifted away. He was so lonely and depressed and he had always been such a happy child.

So our first event was “HeadStrong – A Benefit” and was an evening of music, dance, and food at Ingraham High School. A bunch of families and children showed up, along with many community members. After that night, we knew we would keep creating fun ways for our families and kids to get together and get out in the community. In 2007, we formed a board of trustees and became a 501.c.3 non-profit organization. Harborview Medical Center collaborated with us to do outreach in the Pediatric ICU with HeadStrong/Harborview Totes for families who had a child in the PICU with brain injury. Today we are connected with over 100 families with children and young adults living with brain injury in primarily Western Washington.

Our mission is very simple:

HeadStrong supports youth and young adults living with brain injury and their families, educates about brain injury, and advocates for prevention and recovery support.

Our vision is for young people living with brain injury to have:

* A meaningful place in our communities
* Support for the best recovery possible
* Life with dignity and respect
* Promise for a bright future.

BEST: Tell us about the services, resources and support that HeadStrong provides to youth and their families.

DD: We have five main programs that all focus on building continuity of care, filling gaps in services, and getting out in our communities safely and successfully:

Harborview Outreach Totes for families

HeadStrong’s Tote Program is a collaboration with Harborview Medical Center to reach out to families with children in the Harborview Pediatric Intensive Care Unit (PICU) who have suffered a brain injury. Each Tote includes an array of practical items that help families while their child is in the PICU. We include brochures from BIAWA, HeadStrong, and other support organizations. The Totes give practical tangible support during the early ICU stay and help families get connected to resources when they go home.

Youth Social Events

We hold regular social events for young people recovering from brain injury and their families. Some of our past events include: swim parties, make your own pizza, concerts, bowling, trips to Seattle Center, NW Trek, Camp Korey, and more. Our young people find others who have similar challenges and victories. Our volunteer team includes college students and all the young people learn so much about each other. This past summer we held our first joint BEST HeadStrong Picnic at Dash Point. It was definitely the BEST to have all of us together on a beautiful day for barbeque, beach, and sunshine!

Caregiver Dinners – in Seattle and Tacoma

All friends or family members providing care are welcome. These dinners are filled with honest sharing about the realities of caring for our loved ones. We always have a topic or theme and share resource that we are finding to support recovery. We laugh a lot. We cry sometimes too. We get stronger.

Mentor Training

The HeadStrong Mentor Training Program is designed to train professionals, family members, caregivers, tutors, and anyone living or working with people who live with brain injury. Mentoring is a traditional way societies pass on knowledge by working side by side and setting a positive example. This training helps us reach our potential to be an empowering support person.

Education and Prevention 

HeadStrong presents at numerous conferences on youth and brain injury. Our presentations include educators, artists, youth living with brain injury, and others. Our goal is to end the stigma, isolation, and depression that too often follows brain injury and replace it with companionship, engagement, and hope.

We also participate in prevention programs and testified in Olympia for Washington’s cell phone driving bills and other pedestrian and driving safety events.

BEST: Tell us about the special events that you have coming up for this fall.

DD: This fall and winter we have a bunch of upcoming and ongoing events. You can join us at any of them and check our online calendar for details. Also, you can get on our mailing list for invitations by emailing us at info@headstrongforlife.org.

October 28, 2014 – HeadStrong Seattle Caregiver Dinner

6:30 pm at Bahama Breeze, Southcenter Mall

October 29th – HeadStrong Mentor Training “Identity & Meaningful Projects” – at BEST in Tacoma 5:00 to 9:00 pm

November 25, 2014 – HeadStrong South Caregiver Dinner 

December 7, 2014 – HeadStrong’s Art and Ice Cream Holiday Party

November 11 – HeadStrong Mentor Training “Identity & Meaningful Projects” -at University of Puget Sound, 5:00 to 9:00 pm:

January 2015 – Weirdstock, an Evening of Food, Music & Art

Ongoing – Bobbi-jo’s video project: Life.Stop.Live. – Thank-You Harborview

BEST: What do you think the future holds for HeadStrong?

DD: That is a great question! At our first event in 2006, I would have never imagined all the great people and events we would be involved with today. I think the future holds more. More collaborations. More connections. More support for rebuilding lives in the community. More youth-directed projects and activities like Kory’s Weirdstock concert and Bobbi-jo’s Life.Stop.Live video.

I also see HeadStrong being part of a sea change in supports for recovery and rebuilding lives. The work around neuroplasticity gives us all great hope. I think the work to understand our brain and neuroplasticity will lead to new approaches during recovery. One of these I hope will be adding paraprofessional supports in the form of mentors to help people get back out in the community safely and with trained support. I see HeadStrong collaborating with likeminded organizations to demonstrate the high value of mentoring in the recovery process.

 

 

 

 

 

Our BEST Stories: Meet Barb George

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Being near the ocean is a special experience for many people. Perhaps it’s that breath of really fresh air; the comfort of a soothing cool ocean breeze; the gentle sound and ebb and flow of the water. Coupled with a sense of wonder, the ocean brings past, present and future all into a place of appreciation and profound learning.

Brain Energy Support Team member and TBI survivor, Barb George is much like the ocean: special, a breath of fresh air, comforting, gentle and at the ready to appreciate things and learn from them.

The fact that George actually lives in Grays Harbor County, near the sea, is no surprise; it just fits in more ways than one.

George began life in Burien, Washington. As an infant, she and her family moved east and found themselves in Pennsylvania and New Jersey for a number of years, before returning to the Tacoma, Washington area. There were more moves: Oregon, Georgia and Southwestern Washington. However, three years ago, Grays Harbor beckoned.

“We chose Grays Harbor, after realizing I felt better when on the coastal areas,” explains George. “The climate and the lack of barometric pressure changes has been a drastic change for the better for me.”

George and her husband Jim, welcome the feel of small coastal town life. The couple enjoys getting involved and being active in their adopted and much loved community. Both take part in the local seaport, Habitat for Humanity and on other shore clean-up teams. Barb George also works for a group that does wild life rescue and other things to support the environment.

While George looks with an eye to the future, particularly with her community involvement, she also lovingly enjoys the past. She and her husband own a 100 year old home that houses George’s collections of antiques and vintage toys. The couple also enjoys re-purposing items; everything from furniture to vintage trailers.

But if you really want to see George smile, ask her about her family. Family means the world to George, especially spending lots of time with her six beloved grandchildren, something she positively adores.

“I have four children. Jim and I blended our family 20 years ago,” says George. “We have six grandchildren, ages six months to 16 years.”

George also loves her BEST family. She has been involved with BEST for a little over three years and serves as the board secretary and she is the facilitator of the Grays Harbor Brain Injury Support Group that meets each week. After initially meeting BEST founder and Chief Visionary Officer, Penny Condoll, along with BEST Executive Director, Gloria Kraegel, George felt really good about their mission and vision for BEST.

“I feel very strongly about BEST being supportive to our community; and my heart truly lies in the rural area,” says George. “My accident happened nearly 10 years ago. I was alone on our mountain in Southwestern Washington State, and (I) found myself terribly frustrated. It hurt that I was in such pain, but not able to find a group.”

“BEST came into my life after many treks through the internet. I belonged to several online groups, and am still involved in some; but (I) found that the internet can be fickle in emotional situations sometimes. I needed face to face contact and it just was not available to me.”

Support was critical to George in the past, just as it is today. She is a double TBI survivor (she was head-butted by a horse in the summer of 2004 and had a bad fall a mere six months later, injuring the same area of her head). George has short term memory issues, aphasia and fatigue. The brain injuries brought about a number of life changes.

“I spent a number of years in a darkened room, alone and in pain. I had to close my company after my accident,” shares George.

“Since moving to the harbor, I have been able to go back to work 3 days a week, with a supportive boss. The pace is fast, but my co- workers help me with grace. What I have learned is balance. Well, I am continuing to learn balance! I truly feel that my accident happened because I was juggling too many hard things at once. What I have learned is to lean on others and not think for a moment I can do it all.”

As George’s journey continues and as she continues to help and support others on their personal journeys, her words sum up the BEST experience.

“I feel that the BEST group is vital to growing awareness about TBIs. Penny and Gloria, as well as all the other wonderful people, are so bright and know how to bring out the BEST in others!”

Have a BEST story you’d like to share? Contact Kim T. at kimt@brainenergysupportteam.org.

 

 

 

 

 

 

Our BEST Stories: Meet Barbara Stahura (And Learn How She Can Help You, Too)

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One of life’s great surprises is when an act that is perceived as small at first, grows into something much bigger and quite special. For some, this transformation can be utterly life-changing.

Little did writer, instructional course designer and facilitator, Barbara Stahura know that simply putting words in a journal nearly two decades ago would lead her down an unforeseen path and put her on an extraordinary personal journey, while helping others along the way.

When Stahura looks back to her first journaling experiences, she now realizes that it set the foundation for change and growth in some unexpected and poignant ways. It all started with a desire to heal from tough job situation.

“I began journaling in the early 1990’s when I felt trapped in an incredibly stressful corporate job,” says Stahura. “I knew I had to escape but had no idea what else I could do. At that point, most of what I did with my journal was vent and write about how miserable I was. What I didn’t know until later is that such an approach probably left me stuck for longer than I had to be. If I had written more about a better imagined future, for instance, I might not have suffered as much.

But I did eventually find my way out and liberated myself from corporate America to begin a freelance writing career that lasted for about 16 years. Along the way, I did journaling sporadically and learned about various techniques to use.”

And it was with those new and developing skills as a writer that provided a coping mechanism and a healing salve for Stahura when her personal life and the life of her family were dramatically altered.

“When a hit-and-run driver left my husband, Ken, with a serious traumatic brain injury, I again began journaling the very next day, often pages at a time,” shares Stahura. “I carried my journal everywhere, to the hospital and later the rehab hospital. During that whole terrible time—and for months afterward—I needed a safe place to let out my feelings and to keep a record of what was happening to Ken and me, individually and as a couple.”

At the time of her husband’s accident, the couple had only been married nine months; dealing with a new life reality, not to mention a new marriage, was nothing short of overwhelming. However, Stahura leaned on her trusty journal through these times and she learned a great deal.

“Journaling allows us to “listen” to ourselves in ways we can’t do when just thinking or talking, so that was also an important aspect of my journaling back then, as it still is today. When a life is turned upside down, as ours was, you need a way to reflect on your thoughts and feelings, so you don’t charge off and do something that might not serve you well. It’s also a fantastic way to work through confusing or painful situations. Journaling helped me do that. A counselor at that time diagnosed me with secondary traumatic stress and said journaling was one of the best things I could do for myself.”

Over time since the accident, Stahura continued in her journal and continued to marvel at the healing properties that writing brought to her personally. Yet, it was a simple comment from another person that got her to thinking a little differently about journaling. Stahura didn’t know it at the time, but her idea was about to take her down another path and that path would prove to be quite special.

“Journaling had been immensely helpful for me after Ken’s accident, and as we both recovered, I continued to write. Not as intensely or as often, but I kept at it,” says Stahura. “And several years after the accident, thanks to a comment from an acquaintance, I started thinking that journaling could be helpful for people with brain injury too. I was fortunate to be able to create a six-week journaling program called After Brain Injury: Telling Your Story and begin presenting it at a rehab hospital in Tucson, where we lived then. It became a regular program there, twice a year, from 2007 until the spring of 2011, after which Ken and I moved to Indiana. And now I present it, along with a separate program for family caregivers, four times a year at a rehab hospital here.”

Starting in 2009, Stahura took her ideas, skills and passion to help other families like hers, to the next level.  She co-authored a book based on her program. The book, After Brain Injury: Telling Your Story was published that same year. Today, the book is used around the country by individuals, therapists and support groups. In 2011, Stahura completed a program at the Therapeutic Writing Institute and became a certified journal facilitator.  She is also an instructor at the institute.

It was through Stahura’s work, perseverance and dedication that gave her the opportunity to meet many people and share her vision. She became acquainted with the Brain Energy Support Team (BEST) several years ago at the Washington TBI Conference and it’s been a relationship that both Stahura and BEST cherish and hold special.

“I learned about BEST when I first spoke about journaling at the Washington TBI conference a few years ago,” recalls Stahura. “I had met Craig Sicilia online and through Brain Injury Radio, and then at the conference, I met (BEST Founder and Chief Visionary Officer) Penny Condoll and (BEST Executive Director) Gloria Kraegel. We got to talking and decided that journaling would be a good addition to the BEST lineup of programs. They offer so many great programs and methods of support for people with brain injury and their families. It’s a fantastic organization!  I wish we had something like that here in Indiana—and in every state.”

In fact, Stahura is teaming up with BEST to offer a terrific webinar series to help explore the world of telling one’s own story and the power of writing. It’s a series of three one-hour webinars called Journaling for Well-Being After Brain Injury. People will experience the power of journaling and will discover how short, simple writing exercises can help them use acceptance as a springboard to the future, discover and celebrate positive aspects of their life, maintain hope and gratitude, remain (or become) resilient, move forward, and more.

The fee is $49 per session or $99 for all three. For those who purchase all three sessions, they will also receive a copy of After Brain Injury: Telling Your Story as a special gift. The dates for the webinars for 2014 are September 18, October 23, and November 13, at 11 a.m. Pacific Standard Time and 2 p.m. Eastern Standard Time. The webinar series will also be archived for those who can’t be available at those times.Registration is just a click away through the BEST website. Click HERE to start the process.

Stahura assures participants that all are welcome to participate in the webinar.

“No writing or journaling experience is necessary! And you don’t have to be a “good writer.” There are no rules for journaling. I tell people in my groups that whatever they write is perfect.”

I think the most important elements of journaling are to be as honest as you can and to establish a regular practice of journaling. Since your journal is private, you can learn to be as honest as you can in its pages. If you’re not used to being honest with yourself, it can take time. Be patient and kind to yourself. Your journal will become a powerful tool for self-exploration and self-understanding. It helps to make a commitment to a regular practice, even two or three days a week, because that establishes a positive habit as well as an ongoing record of your life.”

For additional questions or more information on the upcoming webinars or how to register, please contact BEST.

 

 

 

Our BEST Stories: Jay Benson

 

Designer, volunteer and BESTie, Jay Benson, preparing his "inverted" garden display at the University Place "Duck Daze" festival held earlier this year.
Designer, volunteer and BESTie, Jay Benson, preparing his “inverted” garden display at the University Place “Duck Daze” festival held earlier this year.

 

Here’s is the definition of the word, volunteer.

The noun form of the word means a person who freely offers to take part in an enterprise or undertake a task.  The verb form of the word means freely offer to do something.

Now meet Jay Benson.

Benson has been volunteering and participating in activities with the Brain Energy Support Team (BEST) in University Place, Washington, for well over a year.

Benson takes the word volunteer to a whole new level.

For starters, Benson does not  live in Pierce County. He lives in King County, specifically in the city of Kent. Getting to Our BEST Space definitely requires some transportation planning.

Benson takes a shuttle from Kent to the Federal Way Park and Ride and then waits for another shuttle to take him to University Place. There have been those occasional times where the trip has taken a total of over four hours of travel time.

Benson’s response to this?

“It’s worth it!”

Benson, who comes to Our BEST Space Mondays, Wednesdays and Fridays, became acquainted with BEST originally through the Tacoma Area Coalition of Individuals with Disabilities (TACID).  He knew right away that BEST would be a great fit for him.

“It was cool,” says Benson. “I love it. Their (BEST) is so neat and fun to work with.”

Benson also enjoys the people he works with at BEST and describes them as “…loving and sweet.”

And it’s that support and care that Benson holds near and dear to his heart, especially on tough days. He has cerebral palsy, a heart condition and other cognitive and mental health issues that he must deal with on a daily basis. It isn’t easy, but Benson has some strategies that work for him.

“On the tough days, I try to stay positive,” he explains. “I go for walks. I call people up and talk. I have professionals I can reach out to. I like to listen to relaxation tapes, like the sounds of the ocean and the water.”

The other thing that keeps Benson positive is his interest in horticulture. He builds inverted gardens from gutter materials and piping. They stand tall and slim and can be custom designed. The gardens are excellent space savers, practical and versatile. Reaction to the gardens has been great and Benson has carved out a small business for himself. He loves being a designer and an entrepreneur and appreciates the support he gets from BEST to accomplish these goals.

And speaking of goals, Benson has his vision already set for 2015.

“It (inverted gardens) keeps me busy and they are lots of fun to build,” shares Benson. “I see lots of possibilities. In 2015, I want to get (the project) going more and then selling more.”

Benson also wants to continue enjoy and participate in the activities at the Space while continuing his volunteer time for next year, too.

“I want to do a lot of volunteer time. Whatever I need to do!”

Indeed.

Spoken like a true volunteer.

To learn more about Jay Benson’s inverted garden projects or to order one, please contact Kim T. at kimt@brainenergysupportteam.org for more information.