“The things that make me different are the things that make me.” Let’s hang on to that as our #SuperheroSunday mantra and keep in mind that with all our uniqueness and difference we are one community. #BESTcares
Many thanks to Lou Nash of the Edmonds Support Group for sharing updates and articles of interest. In a recent newsletter Lou sent my way was an interesting piece about aphasia.
Aphasia is an acquired communication disorder that impairs a person’s ability to process language and occurs as a result of stroke or TBI. Aphasia does not affect an individual’s intelligence.
I repeat, aphasia does NOT affect intelligence.
According to the National Aphasia Association approximately 180,000 people become aphasic every year, mostly as a result of stroke. They estimate 1 in every 250 people have aphasia.
Communication is important and when we rely on verbal or written communication we find ourselves at a disadvantage when our brains no longer process that correctly. Using other means of communication, creative approaches to not only getting the point across, but understanding what is being “said” is integral to living a successful life with aphasia.
The article made some valuable points like, “Smartphones and tablet computers such as the iPad are very popular, and we have found them to be extremely beneficial and practical for many survivors,” and “The use of features on smartphones such as calendars, notes, reminders and alarms can be very helpful to people with language and other cognitive deficits.”
We know from our own experiences how apps on iPads or tablets, smartphones, and other tools can assist individuals with brain injury ad their loved ones manage daily life. The technology can also aid communication. For example the Oxford Picture Dictionary is an app that lets you click on a picture or word and hear how it is pronounced. This can help them improve naming and listening skills as well as convey a message to others.
These things also enhance our quality of life and allows for greater social integration. Learning about assistive devices, resources we can draw on, and practicing the skills we learn are all part of what support groups offer.
The full article can be found at https://strokeconnection.strokeassociation.org/Winter-2016/Speaking-of-Technology/
FOR IMMEDIATE RELEASE March 15, 2016
Brain Energy Support Team (BEST)
1-877-719-BEST Ext. 106
Hashtags: #TBITalk, #spring4superheroes
Nonprofit Spring Event Seeks to Empower State’s Growing Brain Injury Community
Unique local nonprofit launches spring fundraiser to support continued educational and brain injury awareness efforts in Washington State
University Place, WA: The Brain Energy Support Team (BEST) distinguishes itself from other brain injury organizations in that the leadership, services and programs are built by and for people with brain injury and their families. Beginning March 15, 2016, BEST is seeking to raise $5,000 by March 25, 2016,to refine and expand its educational tools and resources for the brain injury community. Through these efforts, BEST will be further able to increase brain injury awareness, as well as empower the growing brain injury community throughout the state.
The general public will have the opportunity this month to hear people’s personal stories and learn more about the powerful impact of brain injury on individuals, families and communities. People will be invited to donate and learn more online at the BEST website, brainenergysupportteam.org, throughout the campaign. BEST will also be sharing awareness information to take part in the national Brain Injury Awareness Month throughout the entire month of March.
“Because we are an organization entirely created and run by people and their families directly impacted by brain injury, we have a unique perspective on what people in our community need and the need is great,” says Gloria Kraegel, BEST Executive Director. “We often hear directly from the people we support that BEST has created a safe and supportive environment for them to explore and learn new things so that they can feel good about themselves. Through personal and peer educational development, we look to do more than survive, but to actually thrive, feel empowered, and to build the best lives possible going forward.”
About the Brain Energy Support Team (BEST): The Brain Energy Support Team (BEST), is a 501c3 nonprofit organization founded in 2008. The mission of BEST is to provide support, advocacy, public awareness, education and socialization opportunities to individuals with a brain injury and their families. BEST provides support to over 70 brain injury support groups in Washington State. Learn more at brainenergysupportteam.org.
As our #5forsuperheroes giving campaign kicks off this week, we wanted to share with you one of the most important programs that supports our BEST superheroes and their families.
We are so fortunate to have many BEST friends. In fact, we’d like to introduce you to some of our very BEST friends in the virtual world! These are real-life people in the real-life world that participate and enjoy some great and unique online opportunities. (Check out their “virtual” high-fives)!
BEST has created a virtual presence for reaching out to those with brain injury and their caregivers. BEST hosts a variety of social events, small group discussions, workshops and skills trainings. Known as Second Life, our goal is to support those with brain injury to engage in alternative and meaningful learning and PEER support. Our office can be found on Etopia Island in Second Life.
Studies show that many of those with physical and cognitive challenges have an increased sense of self-worth, belonging and improved quality of life through the many experiences they have in Second Life and are better able to adjust to changing real life circumstances.
Second Life is a virtual experience where all things are possible. It offers us the chance to engage in things individuals with physical and cognitive challenges might not otherwise have the opportunity to enjoy; live music, long walks on the beach, bike rides, shopping malls, sailing, dancing and more.
And this is just a taste of what Etopia Island is like.
Interested in exploring how Second Life works? Great! All are warmly welcomed and encouraged to participate. It’s easy to get started. First, click here to read more about Second Life. You’ll find a link at the bottom of that page that shows you how to get started. You needn’t be a computer whiz kid to come and enjoy Second Life. This virtual world is designed to be easy, intuitive and user friendly.
Join us, won’t us?
And many thanks for your contributions to #5forsuperheroes to support programs like these! We appreciate your support.
To celebrate the #5forsuperheroes giving campaign that kicks off TODAY, we are debuting our BEST comics to celebrate!
Enjoy the comics and don’t forget to check out our giving campaign that runs all this week. For a small donation of $5, you can become a part of an elite team of superhero supporters that will help the brain injury community in Washington State thrive. Read more about it HERE.